Download hele richtlijn
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Kinderen, palliatieve zorg voor
- Inleiding
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Algemene aanbevelingen
- Organisatie van zorg
- Advance Care Planning & gezamenlijke besluitvorming
- Psychosociale zorg
- Zorg bij verlies en rouw
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Juridische aspecten van besluitvorming
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Symptomen
- Angst en Depressie
- Delier
- Dyspneu
- Hematologische verschijnselen
- Hoesten
- Huidklachten
- Misselijkheid en Braken
- Neurologische symptomen
- Pijn
- Reutelen
- Vermoeidheid
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Refractaire symptomen
- Palliatieve sedatie
- Vocht en/of voeding onthouding
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Bijlagen
Zorg bij verlies en rouw
Literatuur
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- Kochen EM, Jenken F, Boelen PA, Deben LMA, Fahner JC, van den Hoogen A, et al. When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories. BMC Palliat Care. 2020;19(1):28.
- Aschenbrenner AP, Winters JM, Belknap RA. Integrative review: Parent perspectives on care of their child at the end of life. J Pediatr Nurs [Internet]. 2012;27(5):514–22. Available from: http://dx.doi.org/10.1016/j.pedn.2011.07.008
- Chong PH, Walshe C, Hughes S. Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review. J Palliat Med. 2019;22(6):714–23.
- Dias N, Hendricks-Ferguson VL, Wei H, Boring E, Sewell K, Haase JE. A Systematic Literature Review of the Current State of Knowledge Related to Interventions for Bereaved Parents. Am J Hosp Palliat Med. 2019;36(12):1124–33.
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- Koopmans L, Wilson T, Cacciatore J, Flenady V. Cochrane Database of Systematic Reviews Support for mothers, fathers and families after perinatal death (Review). 2013;(6). Available from: www.cochranelibrary.com
- Longden J V. Parental perceptions of end-of-life care on paediatric intensive care units: a literature review. Nurs Crit Care. 2011;16(3):131–9.
- Sieg SE, Bradshaw WT, Blake S, Forsythe PL. The Best Interests of Infants and Families during Palliative Care at the End of Life: A Review of the Literature. Adv Neonatal Care. 2019;19(2):E9–14.
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- Thornton R, Nicholson P, Harms L. Scoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn. JOGNN - J Obstet Gynecol Neonatal Nurs [Internet]. 2019;48(3):351–60. Available from: https://doi.org/10.1016/j.jogn.2019.02.001
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- Kars MC, Grypdonck MHF, De Korte-Verhoef MC, Kamps WA, Meijer-Van Den Bergh EMM, Verkerk MA, et al. Parental experience at the end-of-life in children with cancer: “Preservation” and “letting go” in relation to loss. Support Care Cancer. 2011;19(1):27–35.
- Coelho A, de Brito M, Teixeira P, Frade P, Barros L, Barbosa A. Family Caregivers’ Anticipatory Grief: A Conceptual Framework for Understanding Its Multiple Challenges. Qual Health Res. 2020;30(5):693–703.
- Johan Maes, Modderman H. Handboek rouw, rouwbegeleiding, rouwtherapie. first edit. Maes J, editor. Witsand Uitgevers Bvba; 2014. 704 p.
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- Horowitz MJ, Bonanno GA, Holen ARE. Pathological grief: Diagnosis and explanation. Psychosom Med. 1993;55:260–73.
- Darlington ASE, Korones DN, Norton SA. Parental coping in the context of having a child who is facing death: A theoretical framework. Palliat Support Care. 2018;16(4):432–41.
- Kempen MM, Kochen EM, Kars MC. Insight into the content of- and experiences with follow-up conversations in pediatrics: A systematic review. Submitted.