Download hele richtlijn
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Kinderen, palliatieve zorg voor
- Inleiding
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Algemene aanbevelingen
- Organisatie van zorg
- Advance Care Planning & gezamenlijke besluitvorming
- Psychosociale zorg
- Zorg bij verlies en rouw
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Juridische aspecten van besluitvorming
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Symptomen
- Angst en Depressie
- Delier
- Dyspneu
- Hematologische verschijnselen
- Hoesten
- Huidklachten
- Misselijkheid en Braken
- Neurologische symptomen
- Pijn
- Reutelen
- Vermoeidheid
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Refractaire symptomen
- Palliatieve sedatie
- Vocht en/of voeding onthouding
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Bijlagen
Psychologische interventies
Literatuur
- National Institute for Health and Care Excellence. End of life care for infants, children and young people with life-limiting conditions: planning and management. [Internet]. London: NICE; 2016 [cited 2021 March 1]. Available from: www.nice.org.uk/guidance/ng61.
- Rosenberg AR, Bradford MC, Barton KS, Etsekson N, McCauley E, Curtis JR, et al. Hope and benefit finding: Results from the PRISM randomized controlled trial. Pediatr Blood Cancer. 2019;66(1):e27485.
- Steineck A, Bradford MC, Lau N, Scott S, Yi-Frazier JP, Rosenberg AR. A Psychosocial Intervention's Impact on Quality of Life in AYAs with Cancer: A Post Hoc Analysis from the Promoting Resilience in Stress Management (PRISM) Randomized Controlled Trial. Children (Basel). 2019;6(11).
- Goldbeck L, Fidika A, Herle M, Quittner AL. Psychological interventions for individuals with cystic fibrosis and their families. Cochrane Database of Systematic Reviews. 2014(6).
- Rosenberg AR, Bradford MC, Junkins CC, Taylor M, Zhou C, Sherr N, et al. Effect of the Promoting Resilience in Stress Management Intervention for Parents of Children With Cancer (PRISM-P): A Randomized Clinical Trial. JAMA Netw Open. 2019;2(9):e1911578.
- Eccleston C, Fisher E, Law E, Bartlett J, Palermo TM. Psychological interventions for parents of children and adolescents with chronic illness. Cochrane Database Syst Rev. 2015(4):CD009660.