Organisatie van zorg

 Literatuur

1. Brouwer M, Maeckelberghe ELM, van der Heide A, Hein I, Verhagen E. Barriers in care for children with life-threatening conditions: a qualitative interview study in the Netherlands. BMJ Open. 2020;10(6):e035863.
2. Mitchell S, Harding S, Samani M, Slowther A-M, Coad J, Dale J. Experiences of general practice of children with complex and palliative care needs and their families: a qualitative study. BMJ Open. 2021;11(1):e041476.
3. van der Geest IM, Bindels PJ, Pluijm SM, Michiels EM, van der Heide A, Pieters R, et al. Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners. J Pain Symptom Manage. 2017;53(3):578-87.
4. Nelson LP, Gold JI. Posttraumatic stress disorder in children and their parents following admission to the pediatric intensive care unit: A review. Pediatric Critical Care Medicine. 2012;13(3).
5. Wong Chung R, Willemen A, Voorman J, Ketelaar M, Becher J, Verheijden J, et al. Managing oneself or managing together? Parents' perspectives on chronic condition self-management in Dutch pediatric rehabilitation services. Disabil Rehabil. 2020;42(23):3348-58.
6. Sisk BA, Kang TI, Goldstein R, DuBois JM, Mack JW. Decisional burden among parents of children with cancer. Cancer. 2019;125(8):1365-72.
7. Alsem MW, Ausems F, Verhoef M, Jongmans MJ, Meily-Visser JM, Ketelaar M. Information seeking by parents of children with physical disabilities: An exploratory qualitative study. Res Dev Disabil. 2017;60:125-34.
8. Alsem MW, Verhoef M, Braakman J, van Meeteren KM, Siebes RC, Jongmans MJ, et al. Parental empowerment in paediatric rehabilitation: Exploring the role of a digital tool to help parents prepare for consultation with a physician. Child Care Health Dev. 2019;45(5):623-36.